Below is the soft copies of the English Translated Version following the original Mandarin Text for easy read.

医生新书献帕金森家庭

爱与理解伴病患前行 /头条

（首邦市9日讯）“献给所有与帕金森氏症共存的人，以及他们所挚爱的亲人。愿它为所有迷惘的人提供清晰的方向，在挣扎中带来力量，在最需要的时候，传递希望。”

槟城槟榔医院（Island Hospital）神经内科医生林天天日前在由大马帕金森病协会（MPDA）所举办的世界帕金森日活动，以及新书发布会上，推介自己的新书《帕金森氏症：患者与照护者指南》。

“我特别设想这本书是放在客厅，而不是仅仅只能在诊间里看到。”

通俗易懂鼓舞人心

书中内容涵盖疾病基础知识、症状应对、治疗选项、心理调适、营养与运动建议，乃至于如何准备病程后期的生活规划。林天天强调，他刻意以浅显语言撰写，避免术语堆砌，再辅以有趣的插画，尽可能地将疾病“讲明白”。

“我希望文字通俗易懂、语气鼓舞人心、内容有科学依据。”

“但最重要的是，我希望患者与照护者都能感受到被理解、被倾听，并获得赋权。”

病患能为自己做决定

他坦言，许多慢性病的治疗多半以医生为主导，病患常被动接受，而非主动参与。然而，帕金森并不像心脏病、癌症那样“生死一线”，而是一种缓慢推进、却影响深远的慢性病，许多照护决策与伦理议题都处于模糊地带，造成许多家庭因为缺乏正确的资讯，陷入内耗或盲从，酿成“好心办坏事”的悲剧。

“我希望这本书能帮他们从‘你不是一个人’，走到‘你有权利也有能力，为自己做决定。’”

不止是医学指南

林天天透露，写作缘起于他在行医的过程中，反复目睹患者与家属对疾病认知不足、面对突如其来的挑战却无从应对，因此这不仅是一部医学指南，更是一封写给患者家庭的信。

“我记得年轻的时候曾看过一部电影，《阿甘正传》。里面有一句台词是‘人生就像一盒巧克力，你永远不知道下一颗会是什么味道。’这句话对帕金森氏症患者来说也很适用。”

“但不止帕金森氏症，所有人也都一样，我们都不知道前方会发生什么，不过，我们仍准备面对并克服面临的挑战。”

改变应对疾病态度

他说，每当有人被诊断患上帕金森氏症时，反应往往可能是震惊、愤怒或否认，但必须通过这些情绪，接受现实。与此同时，沟通也是治疗的一部分。他鼓励患者，应更多地与能够给予能量、关怀和支持的人多接触。

“我们或许无法改变疾病，但可以改变对疾病的态度。”他说，唯有当患者与家属握有正确资讯，能够做出知情决策，帕金森氏症才不再是绝望的代名词。

刘丽香：提醒并不孤单

照护者是患者最坚定力量 //主

大马帕金森病协会主席刘丽香说，世界帕金森日的意义，不在于疾病本身，而在于患者如何彼此连结、给予支持，并不断推动社会认知与医疗进展。

“我们常说，要庆祝世界帕金森日，但实际上，它并不是一个传统意义上的‘庆典’。”

“它体现了多元价值，体现我们在此刻共同相聚、相互支持的意义，提醒我们并不孤单，提高公众的意识。”

她也指出，每一个帕金森氏症患者背后都有默默奉献的亲友，应给予照护者更多关怀与敬意，因为他们往往虽然沉默，但却有着最坚定的力量。

以墨香抚慰病痛

意丈夫热爱中华文化 //主

陈韵森（56岁）与意大利籍丈夫皮埃（81岁）一同出席活动。陈韵森告诉《星洲日报》，皮埃虽然外表是洋人，但内心深处却住着一个热爱中华文化的心，即便是在患上帕金森氏症以后，他也坚持每日一定要写书法。

她说，皮埃早在1993年就被意大利知名公司派驻至马来西亚，从此便深耕于此，一住就是30年，不仅在马来西亚完成职业生涯，也在东方文化的熏陶中，开启了人生另一段章节。

“他退休后特别想学书法，他也特别喜欢中国古代诗词，尤其是唐宋诗人李白、杜甫、苏东坡的作品。”

“他有时会拿一些我从来没有听过的冷门诗作来问我，然后上网查找原文和翻译，再一个字一个字对照。”

更令人动容的是，皮埃虽然如今被诊断罹患帕金森氏症，每日练习书法的习惯却未因此中断，反而成为他对抗病魔的温柔方式。

“很多人担心帕金森氏症会让他手抖，写不了字，但他的线条非常稳。”

每日锻炼与病共存

也是一名书法老师的陈韵森透露，皮埃目前的身体状态仍维持得很稳定，这归咎于他除了每日练习书法外，也坚持每日运动，确保身体各机能保持在松弛的状态，不过分紧绷。

“我会监督他有没有做。他自己也知道，如果自己不动的话，走路会不顺，所以一定要动。”

她说，在皮埃刚刚得知病情时，也曾一度陷入低潮，反复自问：“为什么会是我？”。不过，陈韵森表示，自己与丈夫都没有停留在负面情绪上，而是积极接受治疗，参加社区活动。

她深知帕金森氏症带来的社会误解，以及患者所面临的心理压力，因此选择陪他慢慢来，不催促、不责怪。

“他有时候不想出门，会担心别人怎么看他，但我认为，家人必须调整心态，给他们时间和空间。”

叶家春设计舞蹈课

每周带动患者“动起来” /主

在此次世界帕金森日活动上，每周都会为患者和照护者设计舞蹈课程的教练叶家春（译音，KC Yeah）也以轻松动感的舞蹈带动现场气氛，患者和看护者纷纷律动起来。他说，大家每周四上午10时30分至中午12时，都会聚在一起，跳舞、运动、交流。

他说，病友之间互相关心、交流，舞后还会一起用餐，彼此之间是舞友，更是战友。

“其实我本身曾是一位在航空公司工作的程序人员，不是专业的舞者。但是在退休以后，我一开始从服务长者开始，然后开始结合排舞、恰恰、伦巴、萨尔萨等舞步，让他们一起动起来。”

舞蹈有助延缓病情

他指出，在欧美已广泛开展的“舞动帕金森”（Dancing for Parkinson’s）运动，正是利用舞蹈作为辅助疗法，帮助患者减缓病情恶化。

“舞蹈无法治好帕金森，但可以延迟它的进程。在病程第一阶段和第二阶段时，他们还能动、还能开车；等到第三、第四甚至第五阶段，就可能得靠轮椅了，所以我们尽量鼓励他们在还能动的时候跳舞。”

“即使已进入第三阶段的患者，他们可以坐着，动动手脚，跟着节奏走，这样的律动已经有帮助。”

只要有力气动就别放弃

对帕金森氏症患者，叶家春的忠告是：“要动，一定要动！舞蹈是最快乐、最有节奏的方式。如果停下来，病情会加速恶化。只要还有力气，就动下去，别放弃！”

他强调，自己面对长者所组织的舞蹈课程并不收费。这是他在退休后，为国家服务的方式之一。

陈美宝陪夫抗病11年

“理解不便接纳情绪” /主

大马帕金森病协会成员陈美宝（61岁）指出，对于帕金森氏症患者来说，心灵上的支持和关怀至关重要，从“一向可以”到“逐渐不行”的心理落差也可能是击垮患者的“最后一根稻草”。

她忆述，丈夫杨深祺（67岁）在11年前确诊帕金森氏症，尽管身体逐渐退化，但他依然可以自理日常生活，只是在出门或参加活动方面显得力不从心。

“我们每个星期会参与协会举办的活动，这里就像一个社区，可以互相关怀、互相支持。但是，来到协会只是几个小时，回到家，才是更长时间的陪伴。”

“家人支持真的很重要。”

目前陈美宝与丈夫皆已退休，经济尚可负担，压力较轻，但照护工作依旧需要心力，尤其是情绪管理，要理解患者的不便，接纳他们的情绪。她以11年陪伴写下爱的注脚。病虽不易，但在彼此理解、支持和共行中，生命依然可以缓缓发光。

https://www.sinchew.com.my/?p=6520432

Doctor Dedicates New Book to Parkinson’s Families

Love and Understanding Accompany Patients Forward / Headline

(Subang Jaya, 9 April) – By Phoebe Liew ( Sin Chew Daily Newspaper)

“To all those living with Parkinson’s disease and their loved ones: May this book provide clarity amidst confusion, strength through struggles, and hope when it’s needed the most.”

Dr. Dr Lim Thien Thien, a neurologist at Island Hospital, Penang, launched his new book “Parkinson’s Disease: A Guide for Patients and Caregivers” during a World Parkinson’s Day event and book launch organized by the Malaysian Parkinson’s Disease Association (MPDA).

“I envision this book being placed in the living room—not just seen in the doctor’s office.”

Simple, Clear, and Inspiring Contents

The book covers fundamental knowledge of the disease, symptom management, treatment options, psychological adjustment, dietary and exercise suggestions, and planning for the later stages. Dr Lim deliberately wrote it in plain language, avoiding heavy medical jargon, and included engaging illustrations to make the subject as easy to understand as possible.

“I want the language to be simple, the tone to be uplifting, and the content to be scientifically sound.”

“But most importantly, I hope both patients and caregivers feel understood, heard, and empowered.”

Patients Can Make Their Own Decisions

He noted that treatment for many chronic illnesses tends to be doctor-driven, with patients passively receiving care. However, unlike heart disease or cancer, Parkinson’s progresses slowly and affects many aspects of life. It often involves grey areas in care decisions and ethical dilemmas. Families, lacking accurate information, may face internal conflicts or blindly follow advice—sometimes leading to well-meaning but harmful decisions.

“I hope this book helps them move from ‘You’re not alone’ to ‘You have the right and ability to make decisions for yourself.’”

More Than Just a Medical Guide

Dr Lim said the book was inspired by the many times he witnessed patients and families struggling with insufficient knowledge or unpreparedness in facing challenges. Thus, it’s not only a medical manual but also a heartfelt letter to families affected by Parkinson’s.

“I remember a line from the movie Forrest Gump: ‘Life is like a box of chocolates. You never know what you're gonna get.’ It fits Parkinson’s patients too.”

“But really, it applies to everyone. We don’t know what lies ahead, but we can still face and overcome what comes.”

Changing Attitudes Toward Illness

When someone is diagnosed with Parkinson’s, the first reactions are often shock, anger, or denial. Dr. Lin said it's essential to process these emotions and accept the reality. Communication is also part of healing. He encourages patients to connect more with people who bring energy, care, and support.

“We may not be able to change the disease, but we can change our attitude toward it.”

Only when patients and families have accurate information and can make informed decisions, can Parkinson’s no longer be seen as a symbol of despair.

Liu Lixiang (Sara Lew): A Reminder That We Are Not Alone

Caregivers Are a Patient’s Strongest Support

MPDA President, Sara Lew said World Parkinson’s Day is not just about the disease itself, but about how patients connect, support one another, and push for greater awareness and medical progress.

“We often say ‘celebrate’ World Parkinson’s Day, but it’s not a celebration in the traditional sense.”

“It reflects shared values—the meaning of coming together and supporting one another reminding us we are not alone and raising public awareness.

She highlighted the often-overlooked contributions of caregivers. Behind every Parkinson’s patient is a quietly dedicated loved one, whose steadfast support deserves recognition and respect.

oothing Illness with the Fragrance of Ink

Italian Husband Loves Chinese Culture

Chin Yuen Sean (56) attended the event with her Italian husband, Piergiacomo Mottino (81). She shared with Sin Chew Daily that although Pier may appear Western, his heart is deeply connected to Chinese culture. Even after being diagnosed with Parkinson’s, he insists on practicing calligraphy daily.

Pier was posted to Malaysia in 1993 by a renowned Italian company and has since lived here for 30 years. Not only did he complete his career in Malaysia, but he also embraced Eastern culture deeply.

“After retiring, he really wanted to learn calligraphy. He loves classical Chinese poetry, especially works by poets like Li Bai, Du Fu, and Su Dongpo.”

“Sometimes, he’ll bring me obscure poems I’ve never heard of and ask me about them. He’ll search for the original texts and translations online, then match each word.”

Even more touching is that despite having Parkinson’s, Pier’s daily calligraphy remains steady and firm—it’s his gentle way of resisting the disease.

“Many people worry that Parkinson’s causes hand tremors, but his brush strokes are remarkably steady.”

Daily Practice to Coexist with Illness

Chin, who is also a calligraphy teacher, said Pierre’s stable condition is thanks to not just his calligraphy, but also his commitment to daily exercise. He ensures his body stays relaxed rather than tense.

“I monitor whether he exercises. He knows if he doesn’t move, walking becomes difficult—so he must keep moving.”

Initially, Pier struggled with the diagnosis repeatedly asking, “Why me?” But the couple didn’t dwell in negativity; they pursued treatment and engaged in community activities.

Understanding the stigma and mental stress faced by Parkinson’s patients, Chin chose to take things slowly with him—without pressure or blame.

“Sometimes he hesitates to go out, worried about how others see him. I believe families must adjust their attitudes, and give time and space.”

KC Yeoh Designs Weekly Dance Classes

Encouraging Patients to "Move"

At the World Parkinson’s Day event, dance coach KC Yeoh led a lively dance session, energizing the crowd. He runs weekly dance classes every Thursday from 10:30 AM to 12 PM for patients and caregivers. Everyone dances, exercises, and socializes together.

“Fellow patients support each other. After dancing, we even share a meal. We’re more than dance buddies—we’re comrades.”

KC, formerly a software programmer at an airline, isn’t a professional dancer. After retirement, he started serving the elderly and later incorporated line dancing, cha-cha, rumba, and salsa into his classes.

Dancing Helps Slow Progression

He pointed out that the “Dancing for Parkinson’s” movement, popular in the West, uses dance as a therapy to help slow down the disease’s progression.

“Dance can’t cure Parkinson’s, but it can slows decline. In the early stages, patients can still move and drive. But by stages 3 to 5, they may need a wheelchair. So we encourage them to dance while they still can.”

Even stage 3 patients can participate while seated, moving their limbs to the rhythm. That movement helps.”

As Long As You Can Move, Don’t Give Up

KC’s advice: “Keep moving—dance is joyful and rhythmic. If you stop, the disease progresses faster. As long as you still have strength, keep moving and don’t give up!”

He offers his dance classes for free, considering them part of his service to the nation after retirement.

Chan Bee Poh: 11 Years Supporting Her Husband Through Illness

"Understand Limitations, Accept Emotions"

MPDA member Chan Bee Poh (61) shared that emotional support is crucial for Parkinson’s patients. The transition from being capable to gradually losing abilities can be devastating.

She recalled that her husband, David Yeoh Seng Kee (67), was diagnosed 11 years ago. Though his condition has declined, he can still manage daily activities, though outings and events are more challenging.

“We participate in MPDA’s weekly activities. It’s like a community—full of care and support. But those few hours don’t compare to the longer hours at home.”

“Family support is truly vital.”

Both retired, they are financially stable, but caregiving still takes emotional energy. Managing emotions and understanding limitations are key. Her 11-year journey is a testament of love. Though the disease is tough, through mutual understanding and support, life can still shine—slowly but surely.

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