The Association was initially registered as the Parkinson’s Disease of Selangor and Federal Territory (PERSATUAN PARKINSON SELANGOR DAN WILAYAH PERSEKUTUAN) with the Registrar of Societies of Malaysia bearing the Registration No: 5642/94 Selangor. In 1996, the name of the association was changed to Malaysian Parkinson’s Disease Association (PERSATUAN PARKINSON MALAYSIA) to be more representative of the Parkinson community of Malaysia. It was officially launched on 6th April 1996 by the then Minister of Health of Malaysia, YB Dato' Chua Jui Meng. In October 2005, it received its tax-exempt status from the Inland Revenue Department of Malaysia.
In the early years of the association, the Secretariat was located at the homes of members due to its limited financial resources. Today, it is located at its rented premises, a single-storey corner lot terrace house located in Happy Gardens, Old Klang Road, Kuala Lumpur since October 2005. It is a place which we called our “Parkinson Center”.
The main objectives of MPDA are:
- To provide educational and emotional support to people with Parkinson and their families;
- To promote self-management of their Parkinson’s condition by patients and their families, consistent with the best medical advice;
- To facilitate the provision of suitable professional help and advice to people with Parkinson and their families;
Any person interested in furthering the objectives of the Association of at least 18 years of age, residing or working in Malaysia is eligible for ordinary membership on payment of an Annual Membership Fee. There are four different classes of membership:
- People with Parkinson;
- Supporter; and
How can MPDA help you?
Consistent with its objectives, MPDA provides the following educational and support services:
Health education for people with Parkinson and their caregivers
Generally, the Malaysian public knows very little about Parkinson’s Disease . Thus, people with Parkinson are often anxious and scared when doctors tell them that they have Parkinson’s Disease. Some of them think that they will get paralyzed very soon.
We educate people with Parkinson and their caregivers about Parkinson’s Disease so that they can understand and cope with the various aspects of the illness. We also give up-to-date and reliable information on the various health services available in Malaysia for people with Parkinson /caregivers, some examples are: physiotherapy, home visits, medications, and brain surgery.
Moral support for people with Parkinson and their caregivers.
Parkinson Disease results in significant mental distress to both the patients and their caregivers. The MPDA is a place where people with Parkinson and caregivers share their experience and knowledge with each other. People with Parkinson help and give moral support to each other to cope with the illness. Most importantly, experienced patients/caregivers are the best councilors to newly diagnosed Parkinson’s Disease patients and their caregivers. By becoming members of MPDA, people with Parkinson will know that they are not alone.